The International Turner Syndrome Care Guidelines represent the gold standard for TS medical care, developed by a team of experts from both the US and Europe. TSGA was a primary sponsor of this landmark project.
This family-friendly version translates the clinical guidelines into accessible language, covering key areas including cardiac monitoring, growth hormone therapy, hormone replacement therapy, fertility counseling, and psychological support.
Key recommendations include annual cardiac evaluation, growth hormone therapy starting in early childhood, estrogen replacement therapy beginning at the appropriate age, regular monitoring of thyroid, kidney, and bone health, and neuropsychological evaluation for learning differences.