TURNER SYNDROME GLOBAL ALLIANCE
We connect people living with Turner syndrome to the specialized care, cutting-edge research, and global community they deserve — from diagnosis through every stage of life.
Girls born with Turner syndrome
Average delay to diagnosis
Specialist clinics worldwide
“For the first time, I felt like someone understood exactly what my daughter needed.”
— Parent of a child with Turner syndrome
WHO WE ARE
Founded to close the gap between diagnosis and expert care, TSGA connects patients, families, and clinicians worldwide.
WHO WE SERVE
From newly diagnosed children to adult women, from parents to endocrinologists — TSGA is here for every person touched by Turner syndrome.
WHAT WE DO
We maintain the InsighTS Registry, operate the NASCARR platform, designate specialist clinics, and fund the research that changes lives.
FOR PATIENTS & FAMILIES
Find a specialist clinic near you, access condition guides, and connect with a community that understands your journey.
FOR PROFESSIONALS
Access clinical care guidelines, enroll patients in the InsighTS Registry, and pursue TSGA clinic designation for your practice.
FIND A TS CLINIC
TSGA maintains a directory of specialist clinics across the United States. Search by state to find experienced Turner syndrome care teams near you.
41 clinics across 22 states + DC
OUR PROGRAMS
A longitudinal patient registry powering the most comprehensive dataset on Turner syndrome in the world. Enroll today and add your story to the science.
The North American Specialty Clinic Alliance for Rare and Reproductive conditions — connecting specialist clinics for collaborative care and shared research.
Every dollar raised goes directly toward funding the research, registries, and clinical programs that improve outcomes for people with Turner syndrome.
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