RESEARCH PROGRAM
TSGA funds and coordinates research that transforms how Turner syndrome is understood, diagnosed, and treated — from childhood through adulthood.
A longitudinal patient registry capturing health data across all ages — powering publications, clinical insights, and future treatments.
A clinical data network connecting TSGA-designated clinics to enable multi-site research, standardized care protocols, and shared outcomes data.
From the first clinical description in 1938 to today's multi-site trials — understand the history and future of Turner syndrome science.
FEATURED STUDY
Using data from the InsighTS Registry, this study examined cardiac event rates across 600+ participants over a 10-year period, identifying key risk factors and informing updated screening recommendations.
SUPPORT THE WORK
100% of your donation goes directly to research. TSGA is a 501(c)(3) nonprofit — your gift is fully tax-deductible.