RESOURCES
Everything you need, in one place.
Whether you’re newly diagnosed, a parent navigating care, or a clinician looking for evidence-based tools — TSGA has resources built for you.
Start Here
New to Turner syndrome? These four resources are the best place to begin.
About Turner Syndrome
Understand the genetics, diagnosis, and what TS means for health and development.
Newly Diagnosed
A guided starting point for families who have just received a diagnosis.
Care Guidelines (Family)
The family-friendly version of the international TS care guidelines.
Medical Topics by Area
In-depth articles on the health areas most relevant to Turner syndrome.
Core Professional Resources
Evidence-based tools and programs for clinicians and researchers caring for patients with Turner syndrome.
International Care Guidelines
The 2017 consensus statement on the diagnosis and management of Turner syndrome — the clinical standard of care.
Clinic Designation Program
TSGA-designated clinics meet rigorous standards for multidisciplinary TS care. Learn about the program and how to apply.
Research & Registry
Access InsighTS Registry data, NASCARR network resources, and current research opportunities.
Need the full professional library?
Patient handouts, slide decks, referral forms, and reference articles — all in one place.
CAN'T FIND WHAT YOU NEED?
We're here to help you find it.
Our team is happy to point you toward the right resource, connect you with a clinic, or answer questions about Turner syndrome care.